The Hughes Family: Tap, tap, tap....

Friday, November 11, 2011

Tap, tap, tap....

Is this thing on?

Okay, I'm no longer making promises about keeping up my blog. I clearly can't keep them. I blame it on the fact that my husband got me an iPad and an iPhone and once you have Mac, you never go back. But I've been busting out the ol' laptop lately and it's time to update with pictures.

For those of you friends with me on FB, you've seen them but since my mom refuses to get a Facebook account, I'm going to have to post them here :)

Here is our Halloween pictures that we took when we went to Saddleback Church for their Blocktober Festival. We had a blast!

Ben could have spent hours in the fire engine and police car. I told him this had better be the only time I see him in the back of a police car!

We also visited the pumpkin patch with my cousin and my mom when she came to visit.

We are slowly getting used to life in Southern California. The weather has been beautiful and we've already been to the LA zoo, Legoland, and multiple malls.

Blogger has also updated their program so I can upload photos faster and with the holidays coming up, I'll add more. I know people appreciate our updates and the pictures. Thanks for hanging in there with me!

11 comments:

GemmaNovember 11, 2011 at 10:51 AM
I'm with your mom on the Facebook thing :)
So good to hear from you guys!! Wow Ben looks so well and tall.

Love the pics of the two of them, just oozes too much cuteness to cope with.

Oh and welcome to the iworld :) wouldn't be without our iPhones or iPad, be warned they have minds of their own when it comes to predictive writing. Now you'll see why I say strange stuff as comments from time to time!

Great to see you blogging, it's been way too long!

Hugs from England :) xxx
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What is Cystic Fibrosis?

Cystic Fibrosis is a life threatening, inherited disease, that causes mucus to build up and clog some of the organs in the body. Majorly in the lungs and pancreas. When the mucus clogs the lungs it makes breathing very difficult. The thick mucus also causes bacteria/germs to get trapped in the airways, which causes inflammations and infections that damage the lungs. The mucus can also block the digestive tract and pancreas. It stops the enzymes from getting into the intestines. The body needs enzymes to break down food, which provides important nutrients to help us grow and stay healthy. People with cystic fibrosis often need to replace these enzymes with capsules they take with their meals and snacks to help digest the food and get the proper nutrition.

How do people get CF?

Cystic Fibrosis is a genetic disease. Which means people inherit it from their parents through genes (or DNA), which also determine a lot of other characteristics including height, hair color and eye color. Genes, found in the nucleus of all the body’s cells, control cell function by serving as the blueprint for the production of proteins. The defective gene that is responsible for causing cystic fibrosis is on chromosome 7. To have cystic fibrosis, a person must inherit two copies of the defective CF gene.one copy from each parent. If both parents are carriers of the CF gene (i.e., they each have one copy of the defective gene), their child will have a 25% chance of inheriting both defective copies and having cystic fibrosis, a 50% chance of inheriting one defective copy and being a carrier, and a 25% chance of not having CF or carrying the gene.

What is the life expectancy for people who have CF?

There is no way to accurately predict how long people with cystic fibrosis will live, as many different factors may affect a persons health. Severity of disease and time of diagnosis are two such factors. Many people have a mild case of CF, while others can have moderate or severe cases. In addition, some adults with cystic fibrosis have only recently begun to use new treatments, while an infant diagnosed at birth will have the advantages of starting specialized treatments that were not available even a decade ago. Improved treatment and management of Cystic Fibrosis now results in a much longer life expectancy. Since the 1960’s, average life expectancy has risen from 5 up to just over 37 years

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Friday, November 11, 2011

Tap, tap, tap....

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