There has been something positive out of the last couple crazy weeks.
Ben has officially declared PSEUDOMONAS FREE!! Yes, his culture did NOT grow pseudomonas only some funky bacteria I cannot pronounce. He does have a cough but we’re going to watch it and give him some time to get over it himself. In a week we’ll reevaluate if he needs oral antibiotics. Hooray!!
This is a HUGE weight off my shoulders and I am writing Cayston a thank you letter. I had high hopes for that drug and it did not disappoint. Thank you for everyone’s prayers, I am off to celebrate!