The Hughes Family: First cereal

Tuesday, August 18, 2009

First cereal

Ben had his first taste of cereal yesterday. I decided to start the cereal because he was continuously watching Ryan and I eat. He was even starting to fuss when we did! He did great with very little mess. He is a pro at eating off the spoon, he's been doing it since he was two weeks old with his enzymes!

4 comments:

AnonymousAugust 21, 2009 at 8:54 AM
Very cute little guy! If it's alright I'd like to put a post up on Phoenix's Blog! I've gotten a lot of wonderful support through blogging!
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KateyAugust 21, 2009 at 11:11 AM
Ben is so precious!!!! The Groettum family sent me over to visit your blog...and I love it!!! I look forward to keeping in touch!! There is so much support in the blogging community!! I am going to add you to my blog roll, so others can check out your blog as well!

I have CF and have had a transplant! I have no family history either and also had the intestinal repair surgery 2 days after birth!!! I will definitely keep Ben, your family, and his doctors in my prayers!!
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UnknownAugust 21, 2009 at 12:36 PM
Was sent over by the Groettum family! Just thought I would stop by and say hello! I'm a 29 year old CFer. My blog is www.RunSickboyRun.com if you wanted to find out more about me.

Have a GREAT day!

Ronnie
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MeganAugust 21, 2009 at 4:01 PM
Hi. We have a soon to be 5 year old with CF, diagnosed through newborn screening. He is doing amazing and is a true inspiration to us. We also have a two year old without CF. Aidan's website is
www.caringbridge.org/visit/aidanneville
A cure is coming!!
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I love hearing from you, thank you!

What is Cystic Fibrosis?

Cystic Fibrosis is a life threatening, inherited disease, that causes mucus to build up and clog some of the organs in the body. Majorly in the lungs and pancreas. When the mucus clogs the lungs it makes breathing very difficult. The thick mucus also causes bacteria/germs to get trapped in the airways, which causes inflammations and infections that damage the lungs. The mucus can also block the digestive tract and pancreas. It stops the enzymes from getting into the intestines. The body needs enzymes to break down food, which provides important nutrients to help us grow and stay healthy. People with cystic fibrosis often need to replace these enzymes with capsules they take with their meals and snacks to help digest the food and get the proper nutrition.

How do people get CF?

Cystic Fibrosis is a genetic disease. Which means people inherit it from their parents through genes (or DNA), which also determine a lot of other characteristics including height, hair color and eye color. Genes, found in the nucleus of all the body’s cells, control cell function by serving as the blueprint for the production of proteins. The defective gene that is responsible for causing cystic fibrosis is on chromosome 7. To have cystic fibrosis, a person must inherit two copies of the defective CF gene.one copy from each parent. If both parents are carriers of the CF gene (i.e., they each have one copy of the defective gene), their child will have a 25% chance of inheriting both defective copies and having cystic fibrosis, a 50% chance of inheriting one defective copy and being a carrier, and a 25% chance of not having CF or carrying the gene.

What is the life expectancy for people who have CF?

There is no way to accurately predict how long people with cystic fibrosis will live, as many different factors may affect a persons health. Severity of disease and time of diagnosis are two such factors. Many people have a mild case of CF, while others can have moderate or severe cases. In addition, some adults with cystic fibrosis have only recently begun to use new treatments, while an infant diagnosed at birth will have the advantages of starting specialized treatments that were not available even a decade ago. Improved treatment and management of Cystic Fibrosis now results in a much longer life expectancy. Since the 1960’s, average life expectancy has risen from 5 up to just over 37 years

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Tuesday, August 18, 2009

First cereal

4 comments:

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