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Sunday, July 17, 2011

Sunday night

I can’t think of a more creative header so I typed the only thing that came to mind Smile

I haven’t been in the blogging mood because I’m sure some of you figured out that Jamie had baby Peyton, Thursday morning. The same Jamie that I went to Minnesota with and was only 35 weeks along. Peyton had meconium ileus issues due to her CF and had to be born early. I have to say, not only is Peyton gorgeous but a fighter. The road ahead won’t be easy but it will get better in time.

Ben went through the exact same thing when he was born. At 36-hours-old he also had MI surgery, so I have a *bit* of an idea of what Jamie is going through. It isn’t easy but it will get better.

Now, on to the good news! Ben’s second culture (2 of 3) came back CLEAR of pseudomonas! That means we don’t need to start Cayston again this month! Woohoo! While, I am thankful that it appears the drug helped rid Ben’s lungs of the nasty little bacteria, I am SO thankful we don’t have to go back to 3 treatments a day. Just one more clear culture to say we kicked Mr. Pseudo to the curb!

I will get better with blogging again, I swear! For now I leave you with a picture of our little man who is sitting on top of his favorite car- a jeep! He calls them out when he says them, every time. I’m getting used to hearing “Jeep!” when driving and realizing that he picked out a jeep two streets away!



  1. I'm missing your blog posts! Love seeing Ben gets so big! Yeah for NO CAYSTON!!!!!!!!!!!!!!!

  2. Hi Margaux... My name is Tara and I am an adult CF-er... I am facebook friends with Jen Groettum-- and found the link to your blog from hers! I love it!!!
    I have a 5 1/2 year old step son who's known me his whole life, but anyway... from the age of 1 until even now sometimes he was OBSESSED with Thomas the Tank Engine, playing for hours on end... One of our cars is a Volkswagon beetle in light blue aptly named Thomas. When we're out and about he'll spot another beetle sometimes very far away and will point out, according to color, "I saw Molly (Thomas character), I see Mighty Mac (Thomas character)"-- Your JEEP story reminded me of Alejandro and I got a good chuckle.. It gives a really innocent insight into what goes through these boys' minds.. VEHICLES!! Sorry for the long post.. at any rate, I'm thrilled that Ben is PA free again.. what beautiful news.. Enjoy your days 3-treatments free!!

  3. I'm missing them too!

    Peyton is beautiful and I know she will fight through this. Jamie and Shane have great friends in all of you and I know they will get through this. Such a shock especially straight after Jen's wedding!

    Woohoo for clear culture number two, go Ben! I'm so hoping you guys have kicked Mr P out of master Hughes lungs for good.

    Ben is just gorgeous and a proper boy, love it!

    Take care lovely.



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