The Hughes Family: Christmas Part 2

Thursday, December 31, 2009

Christmas Part 2

We are now down in Carmel Valley for Christmas, Part 2. Tonight, we are having a New Years Party and tomorrow we will be recovering. On Saturday, we plan on taking Ben to the Monterey Bay Aquarium. Ryan and I are really looking forward to introducing Ben to one of our childhood spots. We have many memories of the Aquarium from when we were younger.
Ben has already been spoiled at our first christmas with Ryan's family, but now he is even more. He received a ride-on dump truck, wagon, Rody and ball pit. This is just the toys that haven't been opened yet! He is a well loved, little man.

1 comment:

Ryan HughesDecember 31, 2009 at 3:34 PM
I love it, wish I was there to have seen these in real time. On my way home as soon as things die down around here. Keep some on ice for me!!
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What is Cystic Fibrosis?

Cystic Fibrosis is a life threatening, inherited disease, that causes mucus to build up and clog some of the organs in the body. Majorly in the lungs and pancreas. When the mucus clogs the lungs it makes breathing very difficult. The thick mucus also causes bacteria/germs to get trapped in the airways, which causes inflammations and infections that damage the lungs. The mucus can also block the digestive tract and pancreas. It stops the enzymes from getting into the intestines. The body needs enzymes to break down food, which provides important nutrients to help us grow and stay healthy. People with cystic fibrosis often need to replace these enzymes with capsules they take with their meals and snacks to help digest the food and get the proper nutrition.

How do people get CF?

Cystic Fibrosis is a genetic disease. Which means people inherit it from their parents through genes (or DNA), which also determine a lot of other characteristics including height, hair color and eye color. Genes, found in the nucleus of all the body’s cells, control cell function by serving as the blueprint for the production of proteins. The defective gene that is responsible for causing cystic fibrosis is on chromosome 7. To have cystic fibrosis, a person must inherit two copies of the defective CF gene.one copy from each parent. If both parents are carriers of the CF gene (i.e., they each have one copy of the defective gene), their child will have a 25% chance of inheriting both defective copies and having cystic fibrosis, a 50% chance of inheriting one defective copy and being a carrier, and a 25% chance of not having CF or carrying the gene.

What is the life expectancy for people who have CF?

There is no way to accurately predict how long people with cystic fibrosis will live, as many different factors may affect a persons health. Severity of disease and time of diagnosis are two such factors. Many people have a mild case of CF, while others can have moderate or severe cases. In addition, some adults with cystic fibrosis have only recently begun to use new treatments, while an infant diagnosed at birth will have the advantages of starting specialized treatments that were not available even a decade ago. Improved treatment and management of Cystic Fibrosis now results in a much longer life expectancy. Since the 1960’s, average life expectancy has risen from 5 up to just over 37 years

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Thursday, December 31, 2009

Christmas Part 2

1 comment:

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