The Hughes Family: Sicky

Monday, February 21, 2011

Sicky

I can’t believe that February is almost over! Where did the time go? Before I know it, I’ll be in Minnesota throwing back a glass of champagne with Jen. I am so looking forward to meeting her and taking a mini-vacation with Ryan. I have a feeling her wedding will be here before we know it.

This weekend was low-key. Ben woke up Saturday with a fever, the highest he’s ever had (103). But it went down with Tylenol and Ibuprofen so I wasn’t too worried. He got to lounge around and eat popsicles all day so he was pretty content. I’m fairly certain we picked it up from one of our playgroup friends but after a day, he was fine. He hasn’t had a fever since Saturday so I’m happy to say, we’re outta the woods.

The only bummer was that we missed our first birthday party of the season due to his fever. His energy and appetite were fine, I just felt it was too soon to take him around other kids. Thankfully, we’ll be back to all our normal activities this week!

My activities this week include shopping for Ben’s Toy Story party. I don’t want to leave things til the last minute so I’m starting now.

Ben is continuing to handle his treatments like a stud. I am so thankful for his positive, easy going attitude. It looks like he may also need a haircut before his party too….

4 comments:

GemmaFebruary 21, 2011 at 11:38 AM
Wow cant believe he's nearly 2!! Happy party planning.

It's great you're getting to meet up with another CF mom, I love Jens blog and if she's as nice in person you're going to have a great time i'm sure! (have a few for us too)

Glad Bens fever shifted quickly, it's a shame how our kids miss so much sometimes, I guess it's why we make the most of each and every moment when they are bouncing around.

Take care!
xx
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leslieFebruary 21, 2011 at 6:40 PM
Need Toy Story Party ideas? Plan a great Toy Story Party with lots of fun games, food and activities along with invitation ideas. And try to find also some Toy Story Party Supplies to add more fun and excitement.
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StephanieFebruary 21, 2011 at 7:27 PM
I'm so jealous of you and Jen getting to spend time together! I wish I could join you! I'm so glad Ben is feeling better... He is such a trooper! <3
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BGFebruary 21, 2011 at 8:52 PM
Boo for fevers! But Yeah for Ben's party and easy going treatments!!!!
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What is Cystic Fibrosis?

Cystic Fibrosis is a life threatening, inherited disease, that causes mucus to build up and clog some of the organs in the body. Majorly in the lungs and pancreas. When the mucus clogs the lungs it makes breathing very difficult. The thick mucus also causes bacteria/germs to get trapped in the airways, which causes inflammations and infections that damage the lungs. The mucus can also block the digestive tract and pancreas. It stops the enzymes from getting into the intestines. The body needs enzymes to break down food, which provides important nutrients to help us grow and stay healthy. People with cystic fibrosis often need to replace these enzymes with capsules they take with their meals and snacks to help digest the food and get the proper nutrition.

How do people get CF?

Cystic Fibrosis is a genetic disease. Which means people inherit it from their parents through genes (or DNA), which also determine a lot of other characteristics including height, hair color and eye color. Genes, found in the nucleus of all the body’s cells, control cell function by serving as the blueprint for the production of proteins. The defective gene that is responsible for causing cystic fibrosis is on chromosome 7. To have cystic fibrosis, a person must inherit two copies of the defective CF gene.one copy from each parent. If both parents are carriers of the CF gene (i.e., they each have one copy of the defective gene), their child will have a 25% chance of inheriting both defective copies and having cystic fibrosis, a 50% chance of inheriting one defective copy and being a carrier, and a 25% chance of not having CF or carrying the gene.

What is the life expectancy for people who have CF?

There is no way to accurately predict how long people with cystic fibrosis will live, as many different factors may affect a persons health. Severity of disease and time of diagnosis are two such factors. Many people have a mild case of CF, while others can have moderate or severe cases. In addition, some adults with cystic fibrosis have only recently begun to use new treatments, while an infant diagnosed at birth will have the advantages of starting specialized treatments that were not available even a decade ago. Improved treatment and management of Cystic Fibrosis now results in a much longer life expectancy. Since the 1960’s, average life expectancy has risen from 5 up to just over 37 years

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Monday, February 21, 2011

Sicky

4 comments:

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