As I’ve said before, Ryan and I believe in positive reinforcement when it comes to Ben’s treatments. Now, that doesn’t mean he gets out of them if he doesn’t feel like doing it. It means that we try and find ways to make it fun so he’ll do them willingly. My hope is, he’ll learn in time how his treatments are good for him and make him feel better. I believe we can get here through positive reinforcement and giving the occasional break if absolutely needed.
The first thing I’ve learned is to not get frustrated or angry. Ben can sense this and feeds off it. I stay calm and work with him to get them done.
I also talk through the movie we are watching. Lately, he’s been all about the movie Cars. One of his favorite people, Auntie Megs, bought him the movie when we were at UCSF. We talk about fast Lightening McQueen (below) is going, their different emotions or colors. I basically talk through the whole movie! Some may find this annoying but not Ben :)
We also have the new PARI LC Sprint nebulizer. This has cut down on our nebulizer time. It’s easy to clean, bubbles the fish hooks up to it, and it’s just different from our old nebs. I highly recommend it!
I also have found that taking off bubbles the fish mask for awhile helps. I think the salt on the mask irritates his skin. He had some bumps on his nose because of it. May not be the best way but it works. I can see him inhaling the HTS and that’s all that matters.
Does anybody have any more tricks for us to try??