We have a new “game” in our house as of lately. Whenever I get out Ben’s vest to start treatments, I unhook it and try to put the jacket on before I hook the hoses. The last couple times Ben has thought this is hilarious and has started running from me. Typical 2-year-old boy huh? LOL.
So, I’ve decided to go with it. For 10 minutes he runs around the house avoiding “the jacket of torture” as I call it. Torture because it means he has to sit still for a half an hour. A hard task for this guy lately.
But I’ve found that chasing after him before hand is a good thing. He burns any last little bit (ha!) of energy before having to sit. It gets his lungs open and him breathing deep which is good way to start off treatments, letting the medicine get in deep. And, we try to put a positive spin on treatments. We’ll see how long we can keep this up.
~ Thank you to all who have volunteered services or goods to our wine auction. We were in need of more donations and people have really stepped up. Thank you! If you’d like to purchase tickets to the wine tasting/beer tasting/food eating/auction winning/helping Ben event, click HERE!
~ Ben’s birthday is in 10 days and his birthday party is in 11! Gulp.
~ We have our CF clinic appointment on the ninth. We won’t be reculturing Ben because we are still in our Tobi cycle and have doubt that things have changed. I’ll take him in mid-April to be recultured and to figure out the next steps.