We have a new “game” in our house as of lately. Whenever I get out Ben’s vest to start treatments, I unhook it and try to put the jacket on before I hook the hoses. The last couple times Ben has thought this is hilarious and has started running from me. Typical 2-year-old boy huh? LOL.
So, I’ve decided to go with it. For 10 minutes he runs around the house avoiding “the jacket of torture” as I call it. Torture because it means he has to sit still for a half an hour. A hard task for this guy lately.
But I’ve found that chasing after him before hand is a good thing. He burns any last little bit (ha!) of energy before having to sit. It gets his lungs open and him breathing deep which is good way to start off treatments, letting the medicine get in deep. And, we try to put a positive spin on treatments. We’ll see how long we can keep this up.
~ Thank you to all who have volunteered services or goods to our wine auction. We were in need of more donations and people have really stepped up. Thank you! If you’d like to purchase tickets to the wine tasting/beer tasting/food eating/auction winning/helping Ben event, click HERE!
~ Ben’s birthday is in 10 days and his birthday party is in 11! Gulp.
~ We have our CF clinic appointment on the ninth. We won’t be reculturing Ben because we are still in our Tobi cycle and have doubt that things have changed. I’ll take him in mid-April to be recultured and to figure out the next steps.
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Lol, Azer used to try to play cars and things like that during the Vest. He finally gave up and plays the computer/watches TV/plays PlayStation, Nintendo. Sitting still activities. After he's off of the nebulizer and Vest, that kid nearly climbs the walls. And the doctors ask us, "Does he have energy?" .... Uh .. just a little?
ReplyDeleteThis post made me smile. Luckily (or unluckily, depends on your take of it) we haven't had the vest to contend with. I think Soph wouldn't be best pleased with it!
ReplyDeleteIn response to your comment, it is only now Soph has finally chilled out with things. I don't know whether it's age and understanding or the huge amount of wok her team have put in but it does and will get easier. Something just clicks eventually and from what I can see, you are doing everything just right.
Give Ben another year or two and he'll be bugging you to do his vest!
Take care and I hope you aren't having a pre party melt down :)
xxxx