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Thursday, February 11, 2010


Our CF clinic called yesterday and confirmed that Ben has pseudomonas growing in his lungs. I had 5 minutes of, it’s all my fault, and then I realized that short of keeping him in a bubble, I couldn’t have prevented this.

His cough has improved vastly since starting TOBI. I’m glad we were able to start immediately and not wait for confirmation on his cultures. I am learning to enjoy and cherish these 28-days of TOBI. It’s a time of semi-calmness that I get to enjoy with my son. He snuggles up to me and we watch one of his shows together. I have realized that I never want to take anything for granted with him. I will cherish every moment, even if it’s doing treatments.


Today, we traveled down to Santa Rosa to visit Ryan’s amazing aunt and his grandpa who celebrated his 93rd birthday two weeks ago!


It was so good to be able to visit with him. Papa always enjoys a visit with his great-grandson!

1 comment:

  1. I hope the treatments go well and you get back the results you are hoping for!


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