First of all, I have to say Happy 29th birthday to my wonderful husband!!
Things at the hospital have been going okay. We were moved down a floor which may not seem like a big deal but it was. I felt like we finally had a flow going, knew the nurses and had some-what adapted. We were on the oncology floor and are now on the regular pediatric floor. It’s loud down here because the children are a lot more active and our room is smaller. We are taking it day by day and every time they hook up his Tobramcyin, I am glad we are here. We are getting some good medicine in him that will hopefully clear out the pseudomonas for good.
We have also upped his enzymes from 4 to 5 a meal. He was having diarrhea from the antibiotics which developed into a nasty diaper rash. The good news is we have medical grade diaper rash cream that cleared it up in a day. We decided to up his enzymes just in case he had outgrown his last dosage. Our dietician was also concerned that he hadn’t gained any weight in the last two and a half weeks. He’s obviously an extremely healthy weight, they just get a bit concerned when he stops gaining. So, we are now keeping track of his calorie intake over 24 hours.
Here are so new pics in our new room:
A continuous thank you for all who are offering up prayers, have sent packages, baked cookies, written cards and have emailed me. We are so lucky to have such an awesome support system. You guys are keeping us going. Thank you!!