The Hughes Family: Fabulous News!!

Friday, November 5, 2010

Fabulous News!!

I had a really long post about possibly changing things up with Ben regarding this last culture result. However, before I could publish I got a call from UCSF saying the lab got Ben’s culture results wrong. Another bacteria, thought to be pseudo grew, NOT pseudomonas!!! Oral antibiotics should take care of the bacteria growing! We are so happy to hear this news, I can’t even explain how much. The Cayston order has been cancelled but we will continue with the Pulmozyme as a precaution.

I have more to update you on but I’m off to have some champagne. I’m so happy!!!

6 comments:

Team HayesNovember 5, 2010 at 4:11 PM
YAY!!!
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UnknownNovember 5, 2010 at 5:13 PM
That is awesome!! I'm so so relieved for you all, talk about freaking you out unnecessarily but who cares with that kind of end result!

Woohoo

Xx
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JenNovember 5, 2010 at 6:48 PM
Yippy!!
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NatNovember 5, 2010 at 9:08 PM
Awesome news! Having a drink for you too! Have a great weekend! x
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Rachel OlimbNovember 6, 2010 at 7:54 AM
This is like the best news ever!!!
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UnknownNovember 6, 2010 at 11:01 AM
Great news! Thanks for sharing!
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What is Cystic Fibrosis?

Cystic Fibrosis is a life threatening, inherited disease, that causes mucus to build up and clog some of the organs in the body. Majorly in the lungs and pancreas. When the mucus clogs the lungs it makes breathing very difficult. The thick mucus also causes bacteria/germs to get trapped in the airways, which causes inflammations and infections that damage the lungs. The mucus can also block the digestive tract and pancreas. It stops the enzymes from getting into the intestines. The body needs enzymes to break down food, which provides important nutrients to help us grow and stay healthy. People with cystic fibrosis often need to replace these enzymes with capsules they take with their meals and snacks to help digest the food and get the proper nutrition.

How do people get CF?

Cystic Fibrosis is a genetic disease. Which means people inherit it from their parents through genes (or DNA), which also determine a lot of other characteristics including height, hair color and eye color. Genes, found in the nucleus of all the body’s cells, control cell function by serving as the blueprint for the production of proteins. The defective gene that is responsible for causing cystic fibrosis is on chromosome 7. To have cystic fibrosis, a person must inherit two copies of the defective CF gene.one copy from each parent. If both parents are carriers of the CF gene (i.e., they each have one copy of the defective gene), their child will have a 25% chance of inheriting both defective copies and having cystic fibrosis, a 50% chance of inheriting one defective copy and being a carrier, and a 25% chance of not having CF or carrying the gene.

What is the life expectancy for people who have CF?

There is no way to accurately predict how long people with cystic fibrosis will live, as many different factors may affect a persons health. Severity of disease and time of diagnosis are two such factors. Many people have a mild case of CF, while others can have moderate or severe cases. In addition, some adults with cystic fibrosis have only recently begun to use new treatments, while an infant diagnosed at birth will have the advantages of starting specialized treatments that were not available even a decade ago. Improved treatment and management of Cystic Fibrosis now results in a much longer life expectancy. Since the 1960’s, average life expectancy has risen from 5 up to just over 37 years

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Friday, November 5, 2010

Fabulous News!!

6 comments:

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