I had a really long post about possibly changing things up with Ben regarding this last culture result. However, before I could publish I got a call from UCSF saying the lab got Ben’s culture results wrong. Another bacteria, thought to be pseudo grew, NOT pseudomonas!!! Oral antibiotics should take care of the bacteria growing! We are so happy to hear this news, I can’t even explain how much. The Cayston order has been cancelled but we will continue with the Pulmozyme as a precaution.
I have more to update you on but I’m off to have some champagne. I’m so happy!!!