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Sunday, November 7, 2010

A huge sigh of relief

That’s what Ryan and I took Friday night. We were elated with the news of no pseudomonas. Our Nurse Practitioner said she has never had this happen. To the labs credit, they continuously said that the pseudo results were preliminary. But who would have thought, they would change the result?

So, we have had a happy weekend. Ben’s god mom came to visit and decided Ben needed a new toy to go along with his new house. So Ben is the official owner of a Cozy Coupe.

Ben 19 months 215

Especially today, during the rain, he was having fun pushing it around. Thank you Auntie Megs!

Our order of Pulmozyme arrived late Wednesday evening from the CF pharmacy. I called them the next day and talked to the manager (the same one I had bitched out the day before) and thanked them for the prompt service. Even though it was their fault, I wanted to let them know I appreciated the quick fix. They also threw in some free nebs which is always a plus.

Even better news is, Ben is tolerating the Pulmozyme well. I think the Hypertonic Saline really did a number on his throat so it was always hard getting him to do it. We also only do Pulmozyme in the morning so he gets a neb break at night. He is also on oral antibiotics to get rid of the bacteria he cultured, however I don’t even know how to pronounce it let alone spell it! Our NP even had to sound it out.

I hope everyone else had a great weekend!

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