I know most people have seen this but I wanted to pass it on. It’s an adorable video about CF that can be easily explained to kids. I plan on saving it for Ben’s friends!
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Our Greatest Joy
Our first and only child, Ben is 100% pure boy. He loves anything train, truck or car. You can usually find him pushing Thomas on his tracks or running a matchbox car up the sofa. He goes by the name of Ben, Benjamin, Manny, B, Little Man and many more. Ben may have CF but it will never define who he is. It's only a small part of him. He will grow up knowing he can be anything he wants. He is a little boy who is loved by all who meet him.
Our Family
The Author
- MHughes
- I am a wife to Ryan and Mom to Benjamin and couldn't be happier. Benjamin was born March 11, 2009. Ben was prenatally diagnosed with Cystic Fibrosis after blood test revealed Ryan and I were carriers. With absolutely no family history of the disease it was a huge shock to us and our friends and family. Despite having surgery at less then 48-hours-old to repair his small intestines, we have been lucky with his health. I created this blog to help keep friends and family up-to-date on what we are doing. My hope is that Ben will look back on it one day and see how much we love him. Welcome to our life!! It's pretty amazing :) For more info on Cystic Fibrosis please visit: www.cff.org
Thank you!
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