You’ve heard me talk about the Vertex drugs (VX-770, VX-809) and how these drugs would help change Ben’s life. They would allow him to lead a more “normal” life. I came across a video that really describes the basic defect of CF (something I still don’t fully understand) and how the Vertex drugs will work.
It’s a great video to help you understand better what we’re fighting for. The Vertex drugs are just some of the drugs in the CFF’s drug development pipeline that will hopefully be available to CFer’s in the future. By walking and donating in Great Strides 2011, YOU contribute to these new drugs.
It may be a bit early but please mark your calender for GS 2011 ~ Ben’s Brigade, May 21, 2011. Do not wait for a personal invite for us, join now! You can sign up by clicking the widget on the top left hand corner of my blog. Thank you!!
Great video Margaux! I really hope these drugs continue to work as well as hoped and get on the market soon. I'm hopeful the future is very bright for our children :)
ReplyDeleteHave a great weekend
xx