The Hughes Family: Culture Results

Monday, January 31, 2011

Culture Results

While we haven’t had so much as a cold this winter, we couldn’t avoid everything. Pseudomonas is back.

12 comments:

KristaJanuary 31, 2011 at 3:39 PM
so sorry to hear this! Praying this is the last time!
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CassieJanuary 31, 2011 at 3:57 PM
UCK!!!!! So sorry Margaux
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Brent and JessicaJanuary 31, 2011 at 4:04 PM
Oh no! Gosh, it sounds like you caught it right when he was showing signs though!! Colby has a nasty cough right now and now it makes me want to go get him cultured!! Best of luck, I know he will beat it again!
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Lydia RussellJanuary 31, 2011 at 4:18 PM
:( Not cool, but sometimes it's just something you cannot avoid. I hope it clears up quickly!
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StephanieJanuary 31, 2011 at 4:24 PM
Lots of love to you and your precious son...
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Deciduous HeatherJanuary 31, 2011 at 4:55 PM
(((HUGS))) Hope this is the last time. I know this was dissapointing news.
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Sweet Shots By Nicole!January 31, 2011 at 5:03 PM
Oh, Hugs for you guys....I completely understand the frustration, fear, and everything. We just got that dreaded call a couple weeks ago.....I cried but we are on the fight full force now.
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UnknownJanuary 31, 2011 at 5:33 PM
I know that is frustrating! Here's hoping you can kick it quick!
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NatJanuary 31, 2011 at 9:13 PM
Oh Margaux, I'm so sorry to hear this! Sending big hugs to you all! You can join my I hate PA club! I just wish it would go away and leave out little ones alone - permanently! Hang in there and kick its butt! xxx
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GemmaFebruary 1, 2011 at 3:31 AM
Oh man, this sucks Margaux. It can be beaten if hit hard and fast so don't lose heart.

The frustrating thing is like us, you seem to get rid and it comes back. You guys have done it before, you can do it again.

The one positive I can find is you now know it's there again and can get the treatments started quickly before it has a chance to cause havoc.

You're in our thoughts and if you need a chat, give me a shout.

Take care xxxx
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Caroline's MommaFebruary 1, 2011 at 4:25 AM
Just another CF Momma here :) I just wanted to say I know what the Psuedo call feels like, and I am so sorry :(
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JenFebruary 1, 2011 at 8:09 AM
Boo! It's the worst getting the Pseudo news. You guys do those treatments and kick it's butt!! We will be thinking of Ben. xoxo.
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I love hearing from you, thank you!

What is Cystic Fibrosis?

Cystic Fibrosis is a life threatening, inherited disease, that causes mucus to build up and clog some of the organs in the body. Majorly in the lungs and pancreas. When the mucus clogs the lungs it makes breathing very difficult. The thick mucus also causes bacteria/germs to get trapped in the airways, which causes inflammations and infections that damage the lungs. The mucus can also block the digestive tract and pancreas. It stops the enzymes from getting into the intestines. The body needs enzymes to break down food, which provides important nutrients to help us grow and stay healthy. People with cystic fibrosis often need to replace these enzymes with capsules they take with their meals and snacks to help digest the food and get the proper nutrition.

How do people get CF?

Cystic Fibrosis is a genetic disease. Which means people inherit it from their parents through genes (or DNA), which also determine a lot of other characteristics including height, hair color and eye color. Genes, found in the nucleus of all the body’s cells, control cell function by serving as the blueprint for the production of proteins. The defective gene that is responsible for causing cystic fibrosis is on chromosome 7. To have cystic fibrosis, a person must inherit two copies of the defective CF gene.one copy from each parent. If both parents are carriers of the CF gene (i.e., they each have one copy of the defective gene), their child will have a 25% chance of inheriting both defective copies and having cystic fibrosis, a 50% chance of inheriting one defective copy and being a carrier, and a 25% chance of not having CF or carrying the gene.

What is the life expectancy for people who have CF?

There is no way to accurately predict how long people with cystic fibrosis will live, as many different factors may affect a persons health. Severity of disease and time of diagnosis are two such factors. Many people have a mild case of CF, while others can have moderate or severe cases. In addition, some adults with cystic fibrosis have only recently begun to use new treatments, while an infant diagnosed at birth will have the advantages of starting specialized treatments that were not available even a decade ago. Improved treatment and management of Cystic Fibrosis now results in a much longer life expectancy. Since the 1960’s, average life expectancy has risen from 5 up to just over 37 years

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Monday, January 31, 2011

Culture Results

12 comments:

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