The Hughes Family: Too quiet

Sunday, January 30, 2011

Too quiet

I took a peek into Ben’s room because it was too quiet. We all know that kind of quiet. The kind where you’re sure your child is doing something they shouldn’t. To my surprise, (and delight!) I found Ben reading.

(I’m ignoring the fact that my little Einstein has the book upside down)

I just love his little smile.

3 comments:

JamieJanuary 30, 2011 at 5:24 PM
OMG I LOVE IT!!! Our boys are getting sooo big sooo fast!!!!!
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Lydia RussellJanuary 30, 2011 at 5:28 PM
Wow! Reading on his own! Maybe he's that much of a genius that he can actually read upside down. Never underestimate! Lol!
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UnknownJanuary 30, 2011 at 5:56 PM
Adorable pics. He is one cute little boy!
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What is Cystic Fibrosis?

Cystic Fibrosis is a life threatening, inherited disease, that causes mucus to build up and clog some of the organs in the body. Majorly in the lungs and pancreas. When the mucus clogs the lungs it makes breathing very difficult. The thick mucus also causes bacteria/germs to get trapped in the airways, which causes inflammations and infections that damage the lungs. The mucus can also block the digestive tract and pancreas. It stops the enzymes from getting into the intestines. The body needs enzymes to break down food, which provides important nutrients to help us grow and stay healthy. People with cystic fibrosis often need to replace these enzymes with capsules they take with their meals and snacks to help digest the food and get the proper nutrition.

How do people get CF?

Cystic Fibrosis is a genetic disease. Which means people inherit it from their parents through genes (or DNA), which also determine a lot of other characteristics including height, hair color and eye color. Genes, found in the nucleus of all the body’s cells, control cell function by serving as the blueprint for the production of proteins. The defective gene that is responsible for causing cystic fibrosis is on chromosome 7. To have cystic fibrosis, a person must inherit two copies of the defective CF gene.one copy from each parent. If both parents are carriers of the CF gene (i.e., they each have one copy of the defective gene), their child will have a 25% chance of inheriting both defective copies and having cystic fibrosis, a 50% chance of inheriting one defective copy and being a carrier, and a 25% chance of not having CF or carrying the gene.

What is the life expectancy for people who have CF?

There is no way to accurately predict how long people with cystic fibrosis will live, as many different factors may affect a persons health. Severity of disease and time of diagnosis are two such factors. Many people have a mild case of CF, while others can have moderate or severe cases. In addition, some adults with cystic fibrosis have only recently begun to use new treatments, while an infant diagnosed at birth will have the advantages of starting specialized treatments that were not available even a decade ago. Improved treatment and management of Cystic Fibrosis now results in a much longer life expectancy. Since the 1960’s, average life expectancy has risen from 5 up to just over 37 years

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Sunday, January 30, 2011

Too quiet

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