I just wanted to thank a sweet anonymous reader for saying they were thankful for my blog. It so nice to hear this once in awhile and I’m glad to know people are actually reading this!
When I started this blog, I didn’t think too many people would read it. While I wanted to keep a handful of family members up-to-date on Ben’s CF, I started it mostly for the little man. Not only did I want to keep an online scrapbook, but I wanted Ben to know that I struggled with his diagnosis as he (probably) will in the future. I am human, I make mistakes but I did my best to love and raise him to be a productive member of society.
Life with a chronic illness is no picnic. In fact, it downright sucks. I’m not going to sit here and blow sunshine up your skirt. But I do believe if you stare at the negative too long, you lose sight of the positive. A week after we found out about Ben’s CF, my dad sent me this quote:
"When one door of happiness closes, another opens; but often we look so long at the closed door that we do not see the one which has been opened for us." -Helen Keller
Though I’ve struggled with Ben’s diagnosis, I have also come to appreciate life so much more. More then most people I’m sure.
As Ryan and I continue to think/discuss/pray about baby #2, I hope to be open and honest. This blog is my voice, where I make no excuses for who I am or what I write.
Thank you for following our journey.
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Beautiful words. Thanks for sharing YOUR story with US!
ReplyDeleteSpeaking of loving your blog, did you know you won an award from Registered Nurse? http://www.registerednurse.org/features/cystic-fibrosis/
ReplyDeleteOops! I clicked the button by accident. Anyway, congrats on the accolades! :) I'm a fan of your blog and always have been!!
ReplyDeleteLove your blog Margaux! You have given me more strength than you will ever know in our daily struggle with CF! Thanks for being so honest and open, keep it up! Often I read your thoughts, experiences and observations and it is like I could have written it myself! Life as a CF Mom is no walk in the park! And thanks for the info from your education evening, lots to talk about with our clinic!
ReplyDelete"blow sunshine up your skirt" L.O.L! Love it, friend!
ReplyDeleteAgreed...CF does suck but we have learned so much from Aidan. He is a warrior like nobody else I know. We have been blessed with love and prayers from so many especially as we approach Great Strides and people start pouring in with donations for all our CF warriors...Prayers are with you as you decide about Baby #2...That was probably the most grueling decision for us after hearing Aidan's diagnosis...Best of luck and health to your family....Megan
ReplyDeleteI am new to the CF community... As of now we still dont even know if our daughter has CF or not... We are currently 23 weeks 2 days pregnant. I found out at 12 weeks that I carry DeltaF508 and at 15 weeks that my husband also carries DeltaF508. I have been doing a lot of research, and love every blog I find. I appreciate every raw emotion from the parents, because soon, I will(possibly) be going through the same thing.
ReplyDeleteAmanda
http://alscountryliving.blogspot.com